What is Amyotrophic lateral sclerosis?
“Amyotrophic
lateral sclerosis (ALS), often referred to as "Lou Gehrig's disease," is a progressive neurodegenerative disease that affects
nerve cells in the brain and the spinal cord. Motor neurons reach from the brain to the spinal cord and from the spinal cord
to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually lead to their death.
When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle
action progressively affected, patients in the later stages of the disease may become totally paralyzed. Yet, through it all,
for the vast majority of people, their minds remain unaffected.”
--Taken
from the ALSA website: http://www.alsa.org.
"ALS is a chronic,
progressive, invariably fatal neurological disease. ALS is marked by gradual degeneration of the nerve cells in the central
nervous system that control voluntary muscle movement. The disorder causes muscle weakness and atrophy throughout the body.
In ALS, both the upper motor neurons and the lower motor neurons degenerate or die, ceasing to send messages to muscles. Unable
to function, the muscles gradually weaken, waste away (atrophy), and have fasciculations because of denervation. Eventually,
the ability of the brain to start and control voluntary movement is lost. However, even patients in advanced stages of the
disease may retain the same intelligence, memory, and personality they had before its onset."
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Facts About ALS
*These figures are taken from
various Internet sources.
Visit the links below for more information about ALS!
ALS ORGANIZATIONS
Muscle Dystrophy Association (MDA)
ALSA - Upstate New York Chapter
ALSA - National Website
Donna's Journey With ALS
World Federation of Neurology Amyotrophic Lateral Sclerosis
National Institute of Neurological Disorders and Stroke
National Organization Of Rare Disorders
ALS Therapy Development Association
ALS Hope Foundation
The International ALS Project
INFORMATION ABOUT ALS
The ALS Connection
Focus on ALS
eMedicine.com
Meline Plus
Wikepedia.com
Curt Schillings Pitch for ALS
Facts About ALS
ALS Chat & Forum
RESEARCH & CLINICAL TRIALS
ClinicalTrials.gov
ALSA - A Reason for Hope
ALS Society of Canada (Research)
M.D.A. Research Links
About.com (ALS Research)
Project A.L.S.
Friends of ALS Research
The ALS Recovery Fund
ALS Race for Research Foundation
Laboratory for ALS Research (San Diego)
Overview of ALS Research
NEALS: Northeast Amyotrophic Lateral Sclerosis Consortium
IsrA.L.S. (Israeli ALS Research Association)
Dartmouth-Hitchcock Medical Center (ALS Center)
University of Chicago (Oldest ALS Clinic in the World!)
Johns Hopkins University - ALS Research
Harvard Medical Research
University of Michigan - ALS Research
University of Pennsylvania - ALS Clinic
Yale Neuromuscular MDA/ALS Program
Washington University's Hope Center for Neurological Disorders
University of Miami (ALS Research Center)
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